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Background
Many studies have demonstrated the key role of ultrasound for the antenatal diagnosis
of vasa praevia to prevent perinatal death or severe perinatal morbidity via planned
Caesarean birth. However, little is known currently about which outcomes really matter
to women. A Core Outcome Set (COS) is the minimum group of outcomes that should be
reported in studies on a specific topic so that the results can be compared and combined.
Qualitative studies can identify more outcomes within this category, to generate a
long list of outcomes to be administered and scored in the Delphi survey, and consensus
phase of COS development.
Aim
To explore the outcomes that are important for women with lived experiences of vasa
praevia, to inform the development of a core outcome set, and gain a deeper understanding
of why certain outcomes are more important than others in vasa praevia care.
Methods
An international qualitative study was conducted with women using purposive sampling.
Recruitment was facilitated by the International Vasa Previa Foundation. Semi-structured
interviews were conducted over the phone, audio-recorded and transcribed verbatim.
A descriptive interpretive data analysis was conducted taking inductive and deductive
approaches.
Results
During August to December 2019, 18 women from USA, UK, Canada and Australia who received
an antenatal (n=9) or postnatal (n=9) diagnosis of vasa previa were interviewed. Fifty-three
outcomes were identified and described under five categories: baby’s survival and
health (16 outcomes), mother’s physical health (12 outcomes), mother’s mental and
emotional health (9 outcomes), delivery of care (9 outcomes), and resource use and
cost (7 outcomes).
Conclusion
This study identified a list of woman-centred outcomes, some of which are rarely measured
in vasa praevia care. The findings from this study will inform the development of
an optimal core outcome set for vasa praevia.
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© 2022 Published by Elsevier Inc.
